Patient Stories — The Voices of Sickle Cell Disease
These inspiring people openly share their personal pain and unbelievable challenges arising from this devastating disease. But in the midst of their suffering and their emotional pain from enduring the stigma of sickle cell disease, there is hope and inspiration.
Richard Fletcher participates in martial arts like Wu and Krav Maga to cope with the pain associated with sickle cell disease. One of four children, he lost his sister to sickle cell disease when he was young.
When asked about his earliest memories of dealing with sickle cell disease, Fletcher answered without hesitation:
“I’ve had complications with sickle cell disease all of my life. I’ve been in and ... Read More »
Julian Cann uses writing and similar activities to relieve stress and deal with the pain of sickle cell disease.
He’s a young, up-and-coming rapper who performs and lays tracks using the moniker, Jules King.
Coping with Sickle Cell Disease as a Child
As a child, Cann had countless complications arising from sickle cell disease — complications that landed him in the hospital four, five, or more times a year.
He couldn’t go swimming without ... Read More »
Kyriako Dalmavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other.
Both Dalmavoletes and his younger sister have HbS beta thal.
He knew he was different by about age 4 or 5, but it wasn’t until middle school that he truly understood the impact the disease would have on his life.
“At about age ... Read More »
Darryl Watkins has the HbSS variant of sickle cell disease.
An inspiring, uplifting individual, he is married with three children, all of whom carry the sickle cell trait.
Watkins says that he began to understand the profound impact sickle cell disease would have on his life at the tender age of 6 or 7. He wanted to participate in peewee sports and his parents wouldn’t allow it, ... Read More »